I have decided to take this “heavy duty” drug. I have done a lot of reading on it and all the side effects. I admit I am a little nervous but I am hoping the benefits can outweigh the side effects. I got my prescription yesterday. I am starting with 25 mg. each night for 7 days and then I am supposed to increase to 25 mg in the morning and 25 mg in the evening. I have read, however, of some people who do 50 mg. at night for the next step rather than 25 /25. I am thinking about that depending on the side effects. I don’t want to be fuzzy during the day so if taking it more at night will help, I might try that. If, I am adjusted to the 25 at night at the end of 7 days then it might be fine to try the 25 in the morning – we will have to see how I feel. I am also going away with my husband on our 20th wedding anniversary cruise and I don’t want to be making adjustments to my meds when I am on the trip, so I am thinking I might just stay at 25 mg until we return. I will have to see how I feel. The goal of this post is to provide a diary of my experiences for those considering the drug. However, from what I have read, this drug varies dramatically from person to person. Although it is nice to see how one person progressed, this by no means will be a sample of how someone else will progress.
Day 1: Took 25 mg at 7 pm. Felt very spaced out. Had some vision distortion. Had some taste distortion (very minor).
Day 2: Woke up, had a slight headache (probably not from the topamax), no longer feel spaced out, some taste distortion, maybe some mild appetite decrease (or just wishful thinking). At 8:00 pm took 25 mg. Felt a little spaced out, much less than last night. Significantly less side effects tonight which surprised me. Still have a tad of a headache but again I don’t necessarily think it is from the drug.
Day 3: Felt fine all day. I had no change in appetite. Soda still tasted fine. I decided to consider taking 50 mg tonight since I haven’t had much in the way of side effects. I have decided for sure yet. I took 25 mg at 5:00 pm and may take another 25 mg later tonight – I will wait and see. I am a little spaced out right now but not too bad. I decided to go ahead and take another 25 mg at 7:30 pm. I feel just as spaced out as I felt the first night. Nothing too bad, so I think I will continue to take the 50 mg each day until I get back from vacation and then increase to 75 mg. I hope to see some impact on my appetite and migraines at 50 mg.
Day 4: I woke up feeling fine this morning. I stepped on the scale, hoping to see something going in the right direction but I had GAINED a small amount of weight, WHAT!!! I am hoping it is just a fluke. I am going to try and be really careful about what I eat today and really monitor what my appetite is saying now that I am taking the 50 mg. I have been trying to read what people say about WHEN they started seeing the weight loss. Most people don’t directly tell you but it some say, “I lost 5 pounds or 11 pounds in the first 2 weeks” so I have to assume that means they started losing weight right away and that they didn’t start out on 100 mg per day so they must have lost weight on lower doses like 25 or 50 mg. I drank soda this morning and it still tasted only mildly flat. Not bad enough that I couldn’t drink it and since it is my “coffee” for the day, I want to drink it as long as I can tolerate the taste. I am able to tolerate large doses of meds that affect others at smaller amounts – like I need large amounts of valium to do anything and I can take 2 doses of muscle relaxers 2X per day and not feel tired, so this may be part of the reason why I am not being hit with side effects from the Topamax. But… I really want it to work on my weight as well as my migraines. No migraines yet but it isn’t like I get them all the time so it hasn’t been long enough to tell if it is working on those yet. I plan to take another 25 mg. after I get back from my chiropractic appointment today since I don’t have to go anywhere and then 25 mg. this evening around dinner time. I did take another 25 mg. Continued to feel spacey. I was still hungry and ate a normal dinner – no change in appetite at all
So far don’t see any impact on weight loss at all, really hoping that is going to change. I will be taking another 50 mg. tomorrow. I will take 25 mg in the morning since I don’t have anything to do tomorrow but clean the house.
Day 5: I took 25 mg this morning (well, it was more like noon by the time I got up). It made me feel feel sleepy. It definitely didn’t decrease my appetite at all. I had a bowl of cereal for breakfast, a bowl of pasta for lunch, and 3 slices of pizza for dinner! I checked my weight and I did “lose” the pound I had put on at the beginning of this, so that is good but still no weight loss or loss of appetite. I also haven’t had to “do number 2.” That may be part of the weight – I am going to have to take something to get things moving, had no idea that this could cause constipation but things seemed to have just stopped – so I guess so. I will be taking another 25 mg later tonight. Took it before I went to bed, got tired and went to bed early.
Day 6: I can’t believe it has been 6 days already that I have been on these meds. It is disappointing that the weight is not falling off like I hear from many of the other posts that I read
So far my biggest side effects are constipation, fuzzy head, and tiredness. Not what I was hoping for. So far no migraines but I will need to go 1 month without migraines to feel that it is working for that since my migraines can be sporadic. I took 25 mg. in the late morning today and will take another 25 mg in the evening sometime tonight. I will stay on 50 mg throughout my vacation and then move to 75 mg when I return. Soda still tastes okay. There is a small change and it takes a little flat but tolerable. I am still hungry although my cravings for sweets seems to be a little bit less – we’ll see if this continues. I certainly won’t be boasting 5-11 pounds of weightloss in 2 weeks like others though
I read some studies last night that definitely showed weightloss was correlated to dosage meaning the higher the dosage the more likely you were to experience weightloss. So maybe if I go up in dosage, I still have a chance, however, I don’t see myself going above 100 mg per day with all the side effects and of course, I hear terrible stories about going off the meds, basically if you ever go off – all the weight will come back no matter what you do… I would like to see someone who says that isn’t true for them!
Day 7: The day has finally arrived. In addition to finally getting my constipation a little bit under control, the scale registered a 2-3 pound weight loss this morning. Maybe this is the beginning? I will wait to see more… I am also having pins and needles in my hands, feet, and legs!!! It isn’t too bad (yet)! I took 25 mg this am and will take my second 25 mg tonight.
Day 8: Well, today was not as promising.
I haven’t done my official weigh in but it looks like I am not showing any more loss and my loss is closer to the 2 pounds rather than the 2-3 pounds from yesterday. On the other hand, my weight seems directly related to my constipation – so when food goes in but nothing is coming out, I am going to weigh more – so maybe if that was normalized I would have seen more, who knows. Also, it may not be a daily thing. The good news is that I am still down 2 pounds from the start in 1 week which is healthier than losing more than that in such a short time. So, we will continue to see what happens. I did find a slight bit of an increase in appetite reduction. I did not want to eat anything at all last night and I usually get hungry for a snack while watching TV in the evening. This morning, I feel hungry but don’t want to eat, it is strange. I am due to take my morning pill, so I am off to do that and then I will keep you posted. Not too much to report today. My side effects are much less now after 8 days on 50 mg per day. I would normally increase my dose right now if I were not leaving on vacation but I don’t want to mess with things as it is I am concerned about how my constipation will impact (no pun intended) my trip. I took 2 more laxatives and am waiting but am thinking I may have to take an enema as I am getting uncomfortable. No more tingling, fatigue is better, no more vision issues, head feels clear, no headaches, and weight loss remains at 2 pounds. Although soda doesn’t taste bad, I don’t seem to want to drink it, I am thirsty a lot and my main drink is koolaide made with sweet n low. I drank one glass of tea today and that was the only caffeine I had all day. Will continue to report – although I am sorry to say that there will be no reports or weight updates on the 6 days that I am gone on my trip, you’ll be left in suspense to see what happened! I will be increasing to 25 mg in the morning and 50 mg at night when I return, however.
Day 9: No change in weight. Holding steading at -2 pounds.
Day 10: I will report my weigh in soon but today is going to be my last post before my trip. Summary: some mild side effects but nothing too bad still bothering me at 50 mg, constipation is still a HUGE problem and not sure what to do about that, weight loss is still minimal – hoping that my increase in dosage upon return from my trip will jump start the weight loss.
Day 19: Well, I am back from my cruise. The trip was great, TONS of food. I did not have the side effect of “aversion to food,” I ate quite well – still hoping that maybe I lost weight…. wishful thinking. I stepped on the scale when I got home and had GAINED weight – like 5 pounds or so! Yikes! But, this morning, I was back down to just 1 pound more than when I left. I had no side effects on the ship EXCEPT that my eyesight became really blurry when I read. I read about the vision problems that can be associated with topamax. I have an appointment scheduled with an ophthalmologist to check and make sure I don’t have high optical pressure in my eyes.